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General State Information
State Capacity Grants for Integrating Genomics into Chronic Disease Prevention Program
Genomics and Population Health: United States 2003 Report
Genomics:
A Guide for Public Health
A toolkit developed by ASTHO
Harnessing
Genetics to Prevent Disease & Improve Health
The Partnership for Prevention's new guide that identifies
ways states can shape genetics policies so as to advance individual
and collective health. (PDF - 2003)
Integrating Genetics into State Chronic Disease Programs -
Recommendations for Action
Report and recommendations resulting from a genetic retreat
which brought together 33 federal and state health officials
including representatives of four federal health agencies,
state chronic disease directors, epidemiologists and genetic
coordinators to discuss the impact of the human genome project
on public health chronic disease programs (2001)
The
Role of State Public Health Agencies In Genetics And Disease
Prevention: Results Of A National Survey
Margaret A. Piper et al., Public
Health Reports (2001)
Statewide
Needs Assessment for a Comprehensive Genomics Plan
North Carolina (2003)
What
Does Genetics Mean for Public Health Practice?
ASTHO Report article, March/April, 1999
Frequently
Asked Questions About the Genomic Workforce Competencies
Think
genomically.act locally
CDC fact sheet (2002)
Individual
State Listings
Arizona Department of Health Services
Office
of Women's and Children's Health
This web site includes descriptions of the office's newborn
screening program and genetic services.
California Department of Health Services
Genetic
Disease Branch
Works to protect and improve the health of all Californians.
Georgia Division of Public Health
Genetics Program
Information on the mission and objectives of the Georgia Division
of Public Health's Genetics Program.
Hawaii
Genetics Program
Iowa Department of Public Health
Division
of Family and Community Health
Collects data from a variety of sources in order to observe
trends and review statistics associated with birth defects
in Iowa.
Kansas
Newborn Screening Program
Responsible for screening and follow-up of infants for PKU,
galactosemia, hypothyroidism and hemoglobinopathies.
Maryland Department of Health and Mental
Hygiene
Office
for Hereditary Disorders
"Works to reduce mortality, morbidity and the burdens to individuals
and society from genetic disorders and birth defects and to
improve the quality of life for affected persons."
Michigan
Hereditary Disorders Program
Helps families and professionals learn about the network of
genetic services available in Michigan, and find information
about a wide range of topics related to medical genetics.
Nebraska
Newborn Screening Program
This site contains information on diseases screened for, how
screening is done, how to get screening results, and more.
New
Mexico Newborn Screening
Educational resources, references, and internet links for
heath care practitioners, patients, and their families.
New York State Department of Health
Wadsworth
Center
Investigates the mechanism of action of genes and how this
rapidly evolving information base may be applied to the prevention,
diagnosis and treatment of disease.
Oregon
Newborn Screening Program
The Oregon State Public Health Laboratory's Newborn Screening
Section conducts screening of all infants to prevent mental
retardation and premature death in children through early
detection and treatment of genetic disorders.
Oregon State Genetics Program
This program was initiated in June 2000, to address emerging issues in genetics and public health, including ethical, legal, and social issues.
Texas Department of Health
Genetics Services Division
The Genetics Services Division strives to improve the health
of children who have genetic disorders.
Washington
State Office of Newborn Screening
Tests every child born in Washington State for certain treatable
disorders that may not otherwise be detected before developmental
disability or death occurs.
Wisconsin
Newborn Screening
Dedicated to promoting and encouraging the sharing of knowledge,
communication and resources with health care agencies, families
and anyone else interested in NBS for the benefit of babies
born in Wisconsin.
Regional Genetics Networks
GENES
Genetics Network of the Empire State, Puerto Rico and the
Virgin Islands (New York, Puerto Rico, Virgin Islands)
GeNeS-R-US
(Genetic andNewborn
ScreeningResource
Center of the United States)
The
National Newborn Screening and Genetics Resource Center web
site.
Provides information and resources in the area of newborn
screening and genetics to benefit health professionals, the
public health community, consumers and government officials.
GPGSN
Great Plains Genetics Service Network (North Dakota, Nebraska,
Iowa, Kansas, Missouri, Oklahoma, Arkansas)
MARHGN
Mid-Atlantic Regional Human Genetics Network
(Pennsylvania, New Jersey, Delaware, Maryland, Washington
D.C., West Virginia, Virginia)
Mountain
States Genetics Network
MoStGeNe is made up of genetic service providers and consumers
from six Rocky Mountain States, Arizona, Colorado, Montana,
New Mexico, Utah, and Wyoming.
NERGG
New England Regional Genetics Group (Maine, Vermont, New Hampshire,
Massachusetts, Rhode Island, Connecticut)
PacNoRGG
Pacific Northwest Regional Genetics Group (Washington, Oregon,
Idaho, Alaska)
PSRGN
Pacific Southwest Regional Genetics Group (California, NNevada,
Hawaii)
SERGG
Southeastern Regional Genetics Group (Kentucky, Tennessee,
North Carolina, Georgia, Florida, Alabama, Mississippi, Louisiana)
Multiple State
Listings
March
of Dimes Genetics Resource Directory
Provides information about state genetic resources
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