a series of studies
examining the impact of
fragile X syndrome (FXS) on individuals,
families & the agencies that serve them.

This web site is designed to increase public awareness and understanding of young children with fragile X syndrome (FXS). Visitors to our site can expect to:

• Learn about the effects of FXS on young children
• Read summaries of FXS research studies and findings
• Learn about the experiences of families of children with FXS
• Better understand the behavior of children with FXS
• Read about intervention strategies for children with FXS
• Learn more about services available for children with disabilities
• Find out how to advocate for services

The Carolina Fragile X Project is located at the FPG Child Development Institute, one of the nation's oldest multidisciplinary centers for the study of young children and their families. Research and education activities of the Institute focus on child development and health, especially factors that may put children at risk for developmental problems.

This project is funded by grants from the Office of Special Education programs, United States Department of Education, the FRAXA Foundation, National Institutes of Health, Ronald McDonald House Charities, the National Fragile X Foundation, and the FPG Child Development Center Small Grant Awards. (Please see research section for more details.) The contents of this site do not necessarily represent the positions or policies of the funding agencies.

Home | Overview | Research | Findings | Case Studies | Education | Publications | Personnel | Resources

Questions, comments? Contact Gwen Van Ark Site last updated: April 1, 2004
Phone 1.800.351.4603 Fax 919.966.1786