The HIPAA privacy links are categorized
into the 5 areas listed below. Each
category is hyperlinked to the appropriate section of the document for your
convenience. If you have any suggestions or questions about this page please email
the CDC Privacy Rule Coordinator at email@example.com.
U.S. Department of Health and Human Services: HIPAA Administrative
Simplification - This is the best source for
authoritative information on HIPAA Administrative Simplification:
Transaction and Code Set Standards, Identifier Standards, Privacy
Standards, and Security Standards, as well as HIPAA Implementation Guides.
There are also excellent FAQ links here.
U.S. Department of Health and Human
Services: Office for Civil Rights - This is the office
charged with assisting covered health care organizations become compliant
with the HIPAA Privacy Rule. OCR is also the office for enforcement of the
Office for Civil Rights:
National Standards to Protect the Privacy of Personal Health
Information - OCR website offering specific technical
assistance regarding the implementation of the privacy rule.
U.S. Department of Health and
Human Services: Centers for Medicaid
and Medicare Services (CMS) – HIPAA Site – CMS is the federal agency
responsible for providing health insurance for over 74 million Americans
through Medicare, Medicaid and State Children's Health Insurance Program (SCHIP). In addition to providing health
insurance, CMS also performs a number of quality-focused activities,
including regulation of laboratory testing under the Clinical Laboratory
Testing Amendments (CLIA), development of coverage
policies, and quality-of-care improvement. CMS maintains oversight of the
survey and certification of nursing homes and continuing care providers
(including home health agencies, intermediate care facilities for the mentally
retarded, and hospitals), and makes available to beneficiaries, providers,
researchers and State surveyors information about these activities and
nursing home quality.
Department of Health and Human Services:
Substance Abuse and Mental Health Services Administration (SAMHSA) –
HIPAA Site - SAMHSA is the Federal agency charged with improving the
quality and availability of prevention, treatment, and rehabilitation
services in order to reduce illness, death, disability, and cost to society
resulting from substance abuse and mental illnesses.
Department of Health and Human Services:
Indian Health Service (HIS) – HIPAA Site - The Indian Health Service (IHS), an agency within the Department of Health and Human Services, is
responsible for providing federal health services to American Indians and
Centers for Disease Control
and Prevention’s (CDC) National Immunization Program - The National Immunization Program
(NIP) is a part of the Centers for Disease Control and Prevention,
located in Atlanta, Georgia. As a disease-prevention program, NIP provides
leadership for the planning, coordination, and conduct of
immunization activities nationwide.
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The National Committee on Vital and
Health Statistics - The NCVHS serves as the statutory [42 U.S.C. 242k(k)] public
advisory body to the Secretary of Health and Human Services in the area of
health data and statistics. In that capacity, the Committee provides advice
and assistance to the Department and serves as a forum for interaction with
interested private sector groups on a variety of key health data issues.
Chief Information Officer’s Council
- The Chief Information Officers (CIO) Council was established by Executive
Order 13011, Federal Information Technology, on July 16, 1996. A charter
for the Council was adopted on February 20, 1997. The CIO Council serves as
the principal interagency forum for improving practices in the design,
modernization, use, sharing, and performance of Federal Government agency
information resources. The Council's role includes developing
recommendations for information technology management policies, procedures,
and standards; identifying opportunities to share information resources;
and assessing and addressing the needs of the Federal Government's IT
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State HIPAA Sites
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State-based Organization Sites
HIPAA Readiness Collaborative - The vision of the HIPAA Readiness Collaborative (HRC) is to realize
the positive potential of HIPAA, including improving the flow of patient
information to improve patient care and reducing administrative overhead.
More immediate objectives relate to reducing HIPAA implementation costs by
standardizing approaches, pooling resources and, potentially sharing
Coordinating Council - The Idaho HIPAA
Coordinating Council (IHCC) is made up of individuals who represent those
who are impacted by HIPAA legislation. Members represent health care
providers, insurance carriers, third party billing agents, and State,
County and City governmental entities to name a few. The IHCC provides the
means to create a collaborative healthcare industry-wide process to bring
about a statewide coordination effort that is necessary to achieve
HIPAA Awareness and
Readiness for Kansas - a collaborative effort to inform, educate, share tools and best
practices for the HIPAA readiness in Kansas.
Health Data Consortium - The Massachusetts Health Data
Consortium is a non-profit, private 501 (c) (3) corporation established for
the purpose of developing, collecting, analyzing and disseminating health
care information to improve the health and healthcare of the region.
Minnesota Center for Healthcare Electronic Commerce –
MCHEC is a membership-driven organization whose purpose is to assist the
health care industry in adopting standardized electronic commerce solutions
to increase efficiency and provide better health care to patients. Assistance
is provided by training, standards development, pilot projects and similar
efforts. Membership in MCHEC is open to any health care industry
organization in Minnesota.
New England HIPAA Workgroup -
New England HIPAA Work Group is a forum established to influence on-going
developments related to HIPAA and to promote general New England Healthcare
Industry readiness to implement HIPAA standards. The group's focus is to
network, develop awareness, and collaborate on approaches, techniques, and
best practices for HIPAA compliance; as well as share information with
other industry and HIPAA related groups for a combined effort.
and Vermont Strategic HIPAA Implementation Plan (NHVSHIP) -
NHVSHIP is a
volunteer organization of hospitals, physicians, other health care
providers, health plans, state health departments, and vendors. Members are
working together to improve the understanding of and compliance with the
Health Insurance Portability and Accountability Act of 1996 (HIPAA).
Membership is open to any organization that expresses a desire to work in a
collaborative, non-commercial environment.
New Mexico Coalition for Health
Care Information Leadership Initiatives (NM
CHILI) - NM CHILI is a public/private state-wide organization which is
designed to help the New Mexico healthcare industry become compliant with
HIPAA regulations and other healthcare e-business initiatives. NM CHILI is
a volunteer organization with administrative support from the Health Policy
Commission and member organizations.
North Carolina Healthcare Information and
Communications Alliance, Inc. - NCHICA
is dedicated to improving healthcare through information technology and
secure communications. NCHICA has over 200 member organizations,
representing the many sectors of the healthcare industry.
e-Pennsylvania Alliance - The Alliance is Pennsylvania's only
statewide, nonprofit volunteer organization of technology providers,
supporters and users. It has been established to provide a broad-based
forum for increasing public awareness, interest and involvement in
developing Pennsylvania's communications and information technology
Southern California HIPAA Forum - The purpose of the HIPAA Forum is
to provide ongoing information and education
on specific requirements for HIPAA compliance; collaborate on approaches,
techniques, and solutions to deal most effectively with HIPAA regulations;
discuss the "gray" areas to help each organization decide how
they deal with them; and provide a combined voice to help influence future
regulations and to focus vendors on needed changes to achieve compliance.
Southern HIPAA Administrative Regional Process - SHARP is striving to meet the needs of all regional stakeholders, by
providing a collaborative regional health care and provider focus, which
achieves implemented standards and furthers the development and
implementation of future standards.
HIPAA Collaborative of Wisconsin - HIPAA-COW is a non-profit
organization open to entities considered to be Covered Entities, Business
Associates, and/or Trading Partners under HIPAA, as well as any other
organization impacted by HIPAA regulation.
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–source for up-to-date information regarding HIPAA security &
privacy compliance. Includes HIPAA FAQs, HIPAA Updates, News & Info,
Timelines, Discussion Boards, Events links, Legislation links, Technology
links, links to white papers on electronic security and more. Sponsored by
Tom Hanks and Beacon Partners.
HIPAAGives - GIVES is a collaborative state government health care focus group
resulting in the sharing of information through a clearinghouse highway and
providing a forum for discussing and resolving issues in meeting the Health
Insurance Portability and Accountability Act (HIPAA) legislation.
GIVES has been established to meet the immediate need to exchange
information, identify common government challenges and share solutions in
order to attain HIPAA compliance in the timeframe required. By providing a
government-focused network, our goal is to minimize duplicate effort.
is organized into workgroups that address
specific issues confronting states.
These workgroups include a public health work group addressing the
implications this regulation will have on public health practice at the
American Association of Central Cancer Registries - Established in 1987, NAACCR is a collaborative umbrella
organization for cancer registries, governmental agencies, professional
associations, and private groups in North America interested in enhancing
the quality and use of cancer registry data. Most central cancer registries
in the United States and Canada are members.
HIMSS - Healthcare Information and Management Systems Society
- The Healthcare Information and Management Systems Society
provides leadership in healthcare for the management of technology,
information, and change through publications, educational opportunities,
and member services. HIMSS has more than 43 chapters and more than 12,000
members working in healthcare organizations throughout the world. Members
include healthcare professionals in hospitals, corporate healthcare
systems, clinical practice groups, vendor organizations, healthcare
consulting firms, and government settings in professional levels ranging
from senior staff to CIOs and CEOs.
HIPAA Privacy Joint
Information Center - Ohio -
Full text of the proposed revisions to the HIPAA privacy rules as published
in the Federal Register today. Revisions are posted in both pdf and html
United State Medicine Institute - The U.S. Medicine
Institute for Health Studies (USMI) is a nonprofit 501(c)3 organization
devoted toward enhancing communication between and among federal agencies
and the private sector.
- Workgroup for Electronic Data Interchange - The Workgroup for
Electronic Date Interchange strives to foster widespread support
for the adoption of electronic commerce within healthcare by:
forum for the definition of standards, the resolution of implementation
issues, the development and delivery of education and training programs and
the development of strategies and tactics for the continued expansion of
electronic commerce in healthcare;
healthcare leaders to define, prioritize and reach consensus on the
critical technical and business issues which affect the implementation and
value of electronic commerce;
electronic commerce standards, policies and regulations for healthcare are
thoughtfully developed and implemented;
the primary catalyst for the identification, communication and resolution
of obstacles that impede the growth of electronic commerce within
and educate WEDI members and other healthcare stakeholders about the
benefits and strategies for successfully implementing electronic commerce.
SNIP - WEDI Strategic National Implementation Process -
This is the WEDI site for the Strategic National Implementation Process for
Complying with the Administrative Simplification Provisions of the Health
Insurance Portability and Accountability Act of 1996 (HIPAA).
RX2000 - The RX2000 Institute HIPAA
Knowledge Center - The RX2000 Institute is dedicated to helping healthcare
organizations solve the challenges of rapidly changing regulations,
information technologies and business dynamics. The nonprofit Institute is
committed to bridging healthcare's "organizational digital
divide" to ensure critical information reaches the healthcare
community regardless of size, funding or technological sophistication. The
Institute is supported by its membership, fees for service, foundation
grants and vendor sponsorships.
Health Privacy Project (Georgetown
University) - The Health Privacy Project is dedicated to raising public
awareness of the importance of ensuring health privacy in order to improve
health care access and quality, both on an individual and a community
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to non-federal organizations found at this site are provided solely as a
service to our users. These links do not constitute an endorsement of these
organizations or their programs by CDC or the Federal Government, and none
should be inferred. CDC is not responsible for the content of the individual
organization Internet pages found at these links.