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Surveillance

Through various surveillance projects, CDC monitors the extent of disease, the risk factors, and related complications in persons being treated with blood products. CDC is currently involved in the following projects:

Universal Data Collection (UDC) project to monitor the safety of the blood supply and the occurrence of joint complications

surveillance for Creutzfeldt-Jakob disease (CJD) to establish a system to monitor the presence of this disease

Universal Data Collection project

CDC has established the UDC project to monitor the safety of the nation's blood supply for persons being treated with blood products, as well as to monitor the occurrence of joint complications experienced by persons with hemophilia. UDC is conducted through a network of specialized health-care centers that serve persons with various blood disorders.

The types of data gathered through the project consist of

  • participant demographics

  • bleeding disorder diagnosis

  • treatment regimens and factor replacement products used

  • participant blood sample to test for exposure to bloodborne viruses

  • history of illness due to bloodborne infections and treatment for or vaccination against such infections

  • history of joint disease

The monitoring of the blood supply has virtually eliminated the spread of viral diseases through the use of blood products. Prevention measures have included

  • more sensitive donor screening methods

  • viral inactivation (viral-killing techniques)

  • development of genetically engineered (recombinant) factor

The monitoring of joint complications helps CDC to

evaluate patterns and changes in rates of complications

assess the effectiveness of prevention activities

For more information

Hemophilia Treatment Center Directory and UDC project database

Locate a hemophilia treatment center

Publications
MMWR January 3, 2003 /51(51);1152-1154 Blood Safety Monitoring Among Persons with Bleeding Disorders -- United States, May 1998--June 2002

UDC: Blood safety    PDF format (15 KB) Adobe Acrobat file format

UDC fact sheet *(50 KB) Adobe Acrobat file format
UDC fact sheet - en Espanol* (49 KB) Adobe Acrobat file format

Frequently asked questions about UDC *(57 KB) Adobe Acrobat file format
Frequently asked questions about UDC - en Espanol *(56 KB) Adobe Acrobat file format

UDC information for health-care providers*(54 KB) Adobe Acrobat file format

UDC surveillance testing algorithms*(57 KB) Adobe Acrobat file format

*Copies can be obtained by contacting HANDI at 800-42-HANDI

UDC Surveillance reports

Update: UDC Newsletter 

Surveillance for Creutzfeldt-Jakob disease

CDC is establishing a surveillance system to monitor for Creutzfeldt-Jakob disease (CJD), a rare, fatal, progressively degenerative brain disease that causes dementia. No case of CJD transmission by human blood products has been documented, and the risk of getting CJD from contaminated blood products is most likely extremely small.

For more information

CJD information and resources

Publications
CJD Updates newsletter, September 1998
(77 KB) Adobe Acrobat file format

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This page was last updated October 18, 2004


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National Center on Birth Defects and Developmental Disabilities

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living.  Our work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.