FRAXA was founded in 1994 by three parents of children with Fragile X,
Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific
research aimed at finding a treatment and a cure for Fragile X. Fragile
X research is drastically underfunded, considering its high prevalence,
prospects for a cure, and the promise that this research holds for advancing
understanding of other disorders like autism, Alzheimer's disease, and X-linked
mental retardation.
FRAXA funds grants and fellowships at universities all over the world. We have
funded more than $7.5 million dollars in top-notch science. FRAXA's overhead expenses
have always been just 9% or less of income, as we have just two paid staff and
hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has
grown tremendously, due in large part to our grass-roots efforts. You can help
us accomplish much more. FRAXA financial information and tax forms are available at
Guidestar.org
FRAXA's volunteer Scientific
Advisory Board includes two Nobel Laureates! Members of this board
review all research applications for quality and relevance. Funding
decisions are determined by our Board
of Directors.
