- Archive of Press Releases and Drug Related Alerts
- Archive of TAN Alerts and Public Policy Updates
- Consensus Statement - AIDSVax - Feb 24, 2003
Project Inform’s information and advocacy (IA) department staff works to accelerate the pace of discovery in HIV/AIDS and provides a community voice to the research process. We partner with researchers in government, academia, the community and industry—as well as others—to ensure research meets community needs and is conducted in a timely and ethical manner. We also strive to ensure that early access programs remain inclusive and fair. The feedback loop between Project Inform’s staff, the community of people living with HIV, the research establishment as well as regulatory and legislative bodies makes Project Inform’s programs particularly unique.
The IA team facilitates AIDS research funding by partnering with the Foundation for AIDS Immune Research (FAIR) and participating on advisory boards. Project Inform helps facilitate community-based research initiatives through our Institutional Review Board (IRB). An IRB helps ensure that research is ethical and study details are appropriately conveyed to volunteers.
Project Inform’s advocacy efforts are focused on:
- Immune Restoration and Immune-Based Therapies
Project Immune Restoration focuses unique advocacy attention on immune-based therapies for HIV infection. The widely respected Immune Restoration Think Tank (IRTT) brings together renowned scientists and clinicians to develop new strategies and studies with an emphasis on issues facing people with advanced staged HIV disease. IRTT encourages scientific and institutional collaborations, creating new drug research models and speeding up access to experimental anti-HIV therapies. - Women Living with HIV
Project Wise focuses on the unique treatment information needs of positive women through the Wise Words newsletter, various women-specific publications and community-based educational activities. Project Wise also engages in advocacy activities on behalf of women living with HIV/AIDS. - Anti-HIV Therapies
The Advocacy Department plays a leading role in advocating for early access to useful new therapies, especially for those most in need. Along with other community groups, Project Inform has helped develop strategy studies focusing on when to start or switch therapies. Other advocacy work focuses on identifying and understanding emerging issues such as structured treatment interruptions, lipodystrophy and bone problems. - Treatments for Opportunistic Infections
We are focusing on the growing problem of hepatitis C virus (HCV). Efforts include designing studies with new therapies, including complementary approaches, and bringing more research attention to people who live with both HIV and HCV. - Diagnostic Tests
The advocacy team played a significant role in broadening access to viral load tests and now plays a similar role for new resistance tests. Other efforts include advocating for research to determine how therapeutic drug monitoring and immune markers may provide more information on a person’s overall health or risk of disease progression. - International Efforts
Project Inform staff are focusing on enhancing access to drugs and diagnostic monitoring and improving access to appropriate care in the developing world. Other efforts include increasing community involvement in developing countries and furthering important areas of research on treatment and care that are unique to a particular region or country.
For more information about any of the programs listed above or for other Project Inform activities, contact us at ADVO@projectinform.org or call 415-558-8669.