National MPS Society, Inc.Organization URL(s)
info@mpssociety.org
Other Contact Information
45 Packard Drive
207-947-1445 (Voice) DescriptionThe MPS Society was created to help facilitate the diagnosis and treatment of mucopolysaccharidosis (MPS) and mucolipidosis (ML), to help MPS families, and to educate the public about these rare hereditary disorders. Types of MPS include Hunter, Scheie, Hurler, Maroteaux-Lamy, Sly, Sanfilippo, and Morquio syndromes; types of ML include Sialicosis, I-Cell Disease, Pseudo-Hurler Polystrophy, and ML IV. A parent referral service puts new MPS families in touch with families who are members of the Society. Online Resources
Print ResourcesThe Society publishes a pamphlet about MPS. Serial publication: The MPS Society Newsletter, quarterly--information and articles about MPS by members, MPS and ML families and physicians, researchers, and other professionals.
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