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National Gaucher Foundation - NGF Organization URL(s) www.gaucherdisease.org Other Contact Information 5410 Edson Lane Sute 260 Rockville, MD 20852 800-428-2437 (Voice - Toll-free) 301-816-1515 (Voice) 301-816-1516 (FAX) Description The National Gaucher Foundation (NGF), founded in 1984, is a nonprofit organization whose primary objective is to help in finding a cure and viable treatment program for Gaucher's Disease (GD). NGF also attempts to increase public awareness of this genetic disorder of lipid metabolism affecting an estimated 20,000 people in the United States, primarily Jews of eastern European origin. NGF helps individuals and families affected by GD and also can help with medical referrals. The Foundation funds research on GD and also operates a family support network to aid those in need of information and assistance. It is funded primarily through grants and contributions from individuals, corporations, and foundations. Print Resources Serial publication: Gaucher's Disease Registry Newsletter, quarterly--information on recent research; chapter programs; a medical column; available through the Gaucher's Disease Registry. Related Topics Blood Diseases Gaucher's Disease Genetics Mental Retardation Metabolic Diseases Review Date Wed Sep 1, 2004

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