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Maple Syrup Urine Diseases Family Support Group - MSUD FSG Organization URL(s) dbulcher@aol.com www.msud-support.org/ Other Contact Information 82 Ravine Road Powell, OH 43065 740-548-4475 (Voice) Description The Maple Syrup Urine Disease (MSUD) Family Support Group provides opportunities for support and personal contact for those with MSUD and their families. MSUD, which derives its name from the distinct sweet smell of the urine, affects the way the body metabolizes certain components of protein. The purpose of the support group, which began in 1983, is to gather and distribute information on MSUD, strengthen the liaison between families and professionals, and encourage research and newborn screening for MSUD. The organization sponsors biennial symposia. The group develops resources to meet the goals of support and education. Online Resources Maple Syrup Urine Disease http://www.msud-support.org/intro.htm Print Resources The group publishes a newsletter, brochures, and distributes information for new families and professionals. Related Topics Maple Syrup Urine Disease Mental Retardation Metabolic Diseases Review Date Wed Oct 6, 2004

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