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Joubert Syndrome Foundation, Inc Organization URL(s) joubert@joubertsyndrome.org www.joubertsyndrome.org Other Contact Information 6931 South Carlinda Columbia, MD 21046 410-997-8084 (Voice, ) Description The Joubert Syndrome Foundation, Inc. was founded to share knowledge, experiences and emotional support with those affected by Joubert Syndrome. Joubert Syndrome is the agenesis of the cerebellar vermis characterized clinically by attacks of tachypnea or prolonged apnea, abnormal eye movements, ataxia and mental retardation. The Foundation also offers opportunities to participate in research. Online Resources FAQ - About Joubert Syndrome http://www.joubertsyndrome.org/JS%20FAQ's/JoubertFAQ's.htm Joubert Syndrome Information Center http://www.joubertsyndrome.org/JS%20Information%20Database/JS%20Information.htm Joubert Syndrome Resources http://www.joubertsyndrome.org/JS%20Resources/JS%20Resources.htm Print Resources Newsletters and videotapes are available. Related Topics Apnea Ataxia Telangiectasia Mental Retardation Nervous System Diseases Joubert's Syndrome Review Date Wed Sep 8, 2004

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