Subject Index

 Send the url of this page to a friend

News
 What's New
 Meetings Calendar
 Media Guide

Basic Information
 FAQs
 Glossary
 Acronyms
 Links
 Genetics 101
 Publications

Medicine &
the New Genetics
 Home
 Gene Testing
 Gene Therapy
 Pharmacogenomics
 Disease Information
 Genetic Counseling

Ethical, Legal,
Social Issues
 Home
 Privacy Legislation
 Gene Testing
 Patenting
 Forensics
 Genetically Modified Food
 Behavioral Genetics
 Minorities, Race, Genetics
 Genetics in Courtroom

Education
 Teachers
 Careers
 Students
 Webcasts Audio/Video
 Images
 Videos
 Chromosome Poster
 Presentations
 Genetics 101
 Genética Websites en Español

Research
 Home
 Sequencing
 Instrumentation
 Mapping
 Bioinformatics
 Functional Genomics
 ELSI Research
 Recent Abstracts
 US,Intl. Research Sites
 Funding

Publications
 Human Genome News
 Chromosome Poster
 Primer Molecular Genetics
 To Know Ourselves
 Your Genes, Your Choices
 List of All Publications

  Search This Site

 Contact Us
 Privacy Statement
 Site Stats and Credits

Several other entities also have published documents about the project, many of which are included here.

Quick links to publications on this page:

• U.S. DOE Human Genome Program
  • Contractor-Grantee Workshop Proceedings
  • Program Reports
  • Human Genome News
  • Historical Documents and Goals
• Genomics:GTL Publications
• Microbial Genomics Publications
• Genetics and the HGP
• Ethical, Legal, and Social Issues
• Medicine and the New Genetics
• Genetics in the Courtroom
• Miscellaneous Publications
• Ordering publications

U.S. DOE Human Genome Program

• Contractor-Grantee Workshop Proceedings (available online only)
  • 2002 DOE Human Genome Program Contractor-Grantee Workshop IX
  • 2000 DOE Human Genome Program Contractor-Grantee Workshop VIII
  • 1999 DOE Human Genome Program Contractor-Grantee Workshop VII
  • 1997 DOE Human Genome Program Contractor-Grantee Workshop VI
  • 1996 DOE Human Genome Program Contractor-Grantee Workshop V
  • 1994 DOE Human Genome Program Contractor-Grantee Workshop IV

• DOE Human Genome Program Reports (available online only)
  • 1997 DOE Human Genome Program Report (including research abstracts) also available as Adobe Acrobat pdf files
  • 1993 DOE Human Genome Program Report (including research abstracts)

• Human Genome News (HGN) was the newsletter of the U.S. Human Genome Project from 1989 to 2002. HGN was intended to facilitate communication among genome researchers and to inform persons interested in genome research.
• Historical Documents (available online only)
  • U.S. Human Genome Project Goals
    • Final 5-Year Research Goals: 1998-2003
    • Revised 5-Year Research Goals of the U.S. Human Genome Project: 1993-1998
    • Understanding Our Genetic Inheritance: The U.S. Human Genome Project. The First Five Years: 1991-1995
  • Bermuda Conference Data Release Policies (1997, 1996)
  • Mapping Our Genes: Genome Projects --How Big? How Fast? 1988 report from the U.S. Congress Office of Technology Assessment
  • Report on the Human Genome Initiative for the Office of Health and Environmental Research: April 1987 report that officially outlined the Department of Energy's strategies for the Human Genome Project
  • The Alta Summit, December 1984, by Robert Cook-Deegan, Genomics 5, 661-663 (October 1989)

• Other Reports (available online only)
  • JASON Report JSR 97-315, "Human Genome Project" (1997)
  • Report of the Invitational DOE Workshop on Genome Informatics, 26-27 April 1993 (U.S. DOE White Paper on Bioinformatics)
    

Genomics:GTL Publications

The U.S. Department of Energy's Genomics:GTL is a follow-up program to the Human Genome Program. It will explore how genes, DNA regulatory elements, and proteins function to create living systems.

• Access the full Genomics:GTL publications list here.

Microbial Genomics Publications

The Microbial Genome Program was initiated by the U.S. Department of Energy in 1994 to study the DNA, or genetic material, of microbes that may be useful in helping DOE fulfill its missions.

• Access the full Microbial Genome Program publications list here.

Genetics and the HGP

Of special interest to the general public, particularly students and educators.

• Primer: Genomics and Its Impact on Science and Society: The Human Genome Project and Beyond, (March 2003). This edition covers basic science, the Human Genome Project, what we know so far, Next Steps in Genomic Research, ELSI, medicine, benefits, and more. This primer is also available in print form and in quick-download Acrobat (pdf) format. For better quality, use the high-resolution pdf.
• The Human Genome and Beyond (April 2003). Two-page summary as a pdf file.
• Beyond the Human Genome Project Poster (June 2003). Educational wall poster, downloadable in pdf.
• Gene Gateway - Exploring Genes and Genetic Disorders (2003). Collection of guides and tutorials designed to help novice users get started with online resources and data on human chromosomes, genes, and genetic disorders. See Gene Gateway Web site.
• Human Genome Landmarks: Selected Genes, Traits, and Disorders Poster (2002). Educational wall poster of all 24 human chromosomes and selected genes that have been mapped to them. Print and online versions available from Web site.
• Index to the Human Genome Working Draft Sequence and Analysis articles from Nature and Science (February 2001) .
• Fact Sheet on the Human Genome Project (2001). This 4-page document is an excellent handout with basic facts about the HGP. It is a reprint of several articles from the November 2000 issue of Human Genome News.
• (Archived) To Know Ourselves (1996), an overview of the underlying science of the Human Genome Project; also available in Adobe Acrobat format.

Ethical, Legal, and Social Issues Surrounding the Availability of Genetic Data

• Exploring Genetics Issues Relevant to Minority Communities (August 2003). Two-page brochure as a pdf file.
• Bloodlines: Technology Hits Home A PBS documentary with partial funding from the Ethical, Legal, and Social Issues of the U.S. Department of Energy Human Genome Program. (June 2003).
• DOE Ethical, Legal, and Social Issues Abstracts Booklets (Available online only.)
• Retrospective of the DOE Ethical, Legal, and Social Issues Program: a history of the program, including specific ELSI grants and their products. (2001)
• 1999 DOE Ethical, Legal, and Social Issues Booklet
• 1998 DOE Ethical, Legal, and Social Issues Booklet
• 1997 DOE Ethical, Legal, and Social Issues Booklet
• Your Genes, Your Choices (1997), a booklet describing the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project. Also mirrored on this site.
• Exploring the Impact of Genetic Research on Minorities: DOE and Zeta Phi Beta sorority's National Educational Foundation--article excerpted from Human Genome News (November 2001)
• Challenges and Impact of Human Genome Research for Minority Communities Conference Proceedings (July 2000)
• Pathways and Barriers to Genetic Testing and Screening: Molecular Genetics Meets the High-Risk Family --report by Troy Duster (University of California) and Diane Beeson (California State University, Hayward) (October 1997)
• ELSI Bibliography (publications prior to 1995)

Genetics in the Courtroom

• The Human Genome Project: What a Legal Assistant Needs to Know an article from the Journal for Legal Assistants (August 2000).
• Judicature: Genes and Justice --entire issue. Nov-Dec. 1999.
• Bridging the Gap Between Life Insurer and Consumer in the Genetic Testing Era: The RF Proposal, reprinted with permission of the Indiana Law Journal 74(4) Fall 1999.
• The Judges' Journal of the American Bar Association's "Genetics in the Courtroom" issue, Summer 1997, Vol. 36:3
  • Genetics in the Courtroom: An Introduction
  • Introducing the Human Genome Project: Its Relevance, Triumphs, and Challenges
  • What Can the New Gene Tests Tell Us?
• Public Sector Genetic Services in Florida and Georgia: Current Status and Potential Issues Raised by the Human Genome Project by Ralph W. Trottier, Ph.D., J.D. and Lee A. Crandall, Ph.D. A Final Report from"The Impact of HGI Derived Technologies on Genetic Testing, Screening and Counseling: Cultural, Ethical and Legal Issues" (July 1996).
• Genetic Privacy Act --A draft bill written in 1995 by George Annas of the Boston University School of Public Health to assist legislators. This bill proposed that access to information in genetic data banks should be regulated during sample collection, storage, disclosure, and use. Several state lawmakers adapted language and concepts from the draft bill to write proposals for legislation in their own states.

Medicine and the New Genetics

Documents exploring the impact of genomics on medicine.

• Human Genome Project Black Bag Insert in the Journal for Minority Medical Students (2002) Special 32-page pull-out section from the Spring 2002 issue of the Journal for Minority Medical Students. Document covers basic genetics, Zeta Phi Beta's genetics education program, the genetics of sickle cell anemia, medical genetics, and ELSI issues. Available in pdf.
• Converting Energy to Medical Progress: An introduction to the unique nuclear medicine research funded by the Medical Sciences Division of DOE's Office of Science. 20-page color booklet available on request from HGMIS. (April 2001)
• Careers in Genetics (2003) pdf document discussing various careers in genetics with resources for further information.
• The New Genetics™: Medicine and the Human Genome (2001) is a multimedia CD-ROM for those interested in the impact of genetics and genomics on healthcare and society. It is appropriate for health professionals, medical students, human genetics students, biotechnology trainees, policymakers, and interested members of the public with a foundation in biology. Continuing medical education credits are available.
• Fast Forward to 2020: What to Expect in Molecular Medicine --an article for online magazine TNTY Futures (2000).

Miscellaneous Publications

• New Horizons in Genomics meeting held March 30–April 1, 2003, Santa Fe, New Mexico. Prepared for the U.S. Department of Energy Joint Genome Institute.
• Royce W. Murray editorial appearing in Analytical Chemistry "News & Features" May 1, 1998; pp. 292 A–292 A.
• Learning About the Human Genome Project and Genetics Through the World Wide Web: A printable URL list (updated November 2003).
• A Vital Legacy (1997)-- a 50-year progress report on the revolutionary program that gave rise to the Human Genome Project.
• Serving Science and Society Into the New Milennium --downloadable pdf brochure with overview of DOE’s Office of Biological and Environmental Research (OBER) program; higher contrast version for copying (1999).
• Communicating Science: Building on a Legacy of Achievements: An electronic version of HGMIS exhibit for the BER 50th Anniversary Symposium held May 21-22, 1997, at the National Academy of Sciences in Washington, D.C.
• Exceptional Service Awards -- Booklet describing the work of 13 people who received DOE's Exceptional Service Awards in 1997.

Ordering Publications

• To order printed copies of publications, complete this form. Not all publications are available in printed form.

Send the url of this page to a friend