Published: 6/24/2008
Mr. Speaker, what we’re trying to do today is send a message to families across the country who have members of their family who have Dandy-Walker Syndrome to let them know they are not alone in this fight, that Congress is listening to their concerns, and that Congress is taking action to encourage all the resources that we can bring to bear through the NIH and other organizations to help fight this syndrome. And to make sure that those around the country who have not been heard until recently really have a voice not just through Congress but through the resources we can focus on this very important issue.

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