Directory
Genetics
Human
Genome Project
Maps
The
following links will take investigators directly to three different (but
complementary) assembled views of the human genome, together useful useful
with browsing tools that provide a wide variety of annotations of the
sequence:
Organizations
Genetics Resources on the
Web (GROW) - seeks to
provide an effective forum that encourages communication and collaboration
among individuals interested in Web-based provision of high-quality
information about human genetics, especially those aspects of human
genetics dealing with health, to health professionals and the public.
National Human Genome Research
Institute at the (NIH) including its ELSI
(Ethical, Legal and Social Implications of Human Genetics Research)
Program.
Human
Genome Project (HGP) Information page by the Department of Energy features an extensive
list of links on the HGP including the progress and goals of the HGP
and information for educators and students. For the ethical, legal
and social issues raised by the project click here.
Centers for Disease
Control (CDC) Office of Genomics and Disease Prevention - provides
public health professionals with current information on the impact of
human genetic research and gene discoveries on disease prevention and
health promotion.
The Human Genome Organisation
(HUGO) - is the international organisation of scientists involved in the Human
Genome Project (HGP), the global initiative to map and sequence the human genome. HUGO was established in
1989 by a group of the world's leading genome scientists to promote international collaboration within the project.
The SNP Consortium Ltd - a non-profit
foundation organized for the purpose
of providing public genomic data. Its mission is to develop up to
300,000 SNPs
distributed evenly throughout the human genome and to make the
information
related to these SNPs available to the public without intellectual
property
restrictions.
The Council for Responsible Genetics
- publisher of GeneWATCH, a national bulletin on the implications of
biotechnology. Site contains testimony presented to U.S. Congress, position
papers, and legislative clearinghouse.
The Human
Genome Diversity Project - is an international project that seeks
to understand the diversity and unity of the entire human species. Site
includes their model ethical protocol for collecting DNA samples.
Educational Information
A Guide to Ethics and Genetics
on the Web - maintained by Richard Sharp, Ph. D. of the National
Institute of Environmental Health Sciences. Provides links to federal
programs, articles and reports, funding, and discussion groups.
Genetics and Ethics
Web Directory
-
categories include online genetics-ethics literature, professors studying genetics and ethics,
news and bulletins, plus other genetics-ethics resources. Site is maintained
by Bryn Williams-Jones at the University of British Columbia.
Genomics: A Global
Resource - presented by the Pharmaceutical Research and Manufacturers
of America - includes resources on the ethics of genomics, therapeutics,
federal, state, and international genomics legislation, bioinformatics
and news updates.
The Gene Letter a site
with numerous links to online articles on genetics, eugenics, DNA patenting,
gene therapy, and stem-cell research. This site also contains links
to several policy statements and legislation. Published by GeneSage.
Report: Genetics and Human Behaviour-
published by the Nuffield Council on Bioethics in 2002, this report considers the ethical, legal and social issues that are raised by research
on behavioral genetics. It focuses on human behavior within the normal range of variation, looking at traits such
as intelligence, antisocial behavior, personality and sexual orientation.
Genetics
Education Center - University of Kansas Medical Center - this
website is designed for educators interested in human genetics and the
human genome project. 
Last updated: 12/06/02 10:30 AM