There is an urgent need for statistical information on women's health and health care services. In particular, there is a startling lack of data on women with disabilities. Here is a list of publications and organizations that provide facts and figures on many of the health issues specifically affecting women with disabilities.

Key sources for disability data

 National Institute of Mental Health Statistics

 U.S. Census Bureau - Disability Data

Health Conditions and Impairments Causing Disability

National Study of Women with Physical Disabilities

Last updated: August 2004

Publications

1.   Disability Data for Disability Policy: Availability, Access and Analysis - This paper provides background information on data sets containing information on health care and long-term supports for persons with disabilities.
   
   
2.   Health Conditions and Impairments Causing Disability (© DSC at UCSF) - This abstract presents data on the prevalence of disabling conditions among the civilian non-institutionalized population of the United States.
   
   
3.   HIV/AIDS Statistics - This publication compares statistical data for HIV/AIDS prevalence worldwide vs. the United States.
   
   
4.   Literature Review of the Status of Research on the Transportation and Mobility Needs of Older Women - This publication contains statistical information on older women and transportation..
   
   
5.   Trends in Disability Rates in the United States, 1970-1994 (© DSC at UCSF) - This information sheet provides a look at overall trends in the U.S. population of people with disabilities.
   
   
6.   Women's Health Issues: An Overview - This publication contains a broad statistical overview of issues related to women's health such as; cardiovascular disease, cancer, autoimmune diseases, violence, reproductive health, stroke, access to health care, etc.
   
   
7. Abuse (Copyright © Center for Research on Women with Disabilities) - This publication provides statistical information concerning abuse of women from the National Study of Women with Physical Disabilities.
   
   
8. Access to Disability Data (Copyright © InfoUse) - This internet site provides data resources such as chartbooks, tables and surveys as well as other key resources.
   
   
9. Breast and Cervical Cancer Screening Among Women with Physical Disabilities (Copyright © Center for Research on Women with Disabilities) - This article reports findings from the National Study of Women with Physical Disabilities about rates of screening for breast and cervical cancer factors associated with screening in various groups studied.
   
   
10. Chronic Conditions (Copyright © Center for Research on Women with Disabilities) - This fact sheet describes CDC experimental findings which have begun to shed some light on the types of conditions people with disabilities experience as they age. It also discusses ways in which people with disabilities can get information on their options for medications, therapies, or lifestyle changes that could help them avoid acquiring new health problems.
    
    
11. Disability Among Racial and Ethnic Groups (Copyright © DSC) - This publication contains information on medical considerations, but also social, economic, and cultural factors, the prevalence of disability in the different ethnic groups.
    
    
12. Gynecologic Health (Copyright © Center for Research on Women with Disabilities) - This fact sheet contains statistical information concerning reproductive health and women with disabilities from the National Study of Women with Physical Disabilities.
    
    
13. Pregnancy (Copyright © Baylor College of Medicine) - This fact sheet contains statistical information concerning pregnancy and women with disabilities from the National Study of Women with Physical Disabilities.
    
    
14. Prevalence of Abuse of Women with Physical Disabilities (Copyright © Center for Research on Women with Disabilities) - This fact sheet contains statistical information concerning the prevalence of abuse of women with physical disabilities from the National Study of Women with Physical Disabilities.
    
    
15. Sexual Functioning (Copyright © Center for Research on Women with Disabilities) - This fact sheet contains statistical information on sexual functioning and women with disabilities from the National Study of Women with Physical Disabilities.
    
    
16. Sexuality Information (Copyright © Center for Research on Women with Disabilities) - This fact sheet contains statistical information concerning sexuality and women with disabilities from the National Study of Women with Physical Disabilities
    
    
17. Sexually Transmitted Disease (Copyright © Baylor College of Medicine) - This fact sheet contains statistical information concerning sexually transmitted diseases and women with disabilities from the National Study of Women with Physical Disabilities.
    
    

Organizations

1.   CDC Division of Diabetes Translation Publication Office
   
   
2.   Centers for Disease Control and Prevention (CDC)
   
   
3.   Disability and Health, NCBDD, CDC, OPHS, HHS
   
   
4.   Division of Diabetes Translation, NCCDPHP, CDC, OPHS, HHS
   
   
5.   National Center for Health Statistics, CDC, OPHS, HHS
   
   
6.   National Center on Birth Defects and Developmental Disabilities, CDC
   
   
7.   National Institute of Mental Health, NIH, HHS
   
   
8.   National Institute of Neurological Disorders and Stroke, NIH, HHS
   
   
9.   National Institute on Disability and Rehabilitation Research, ED
   
   
10.   National Institutes of Health, OPHS, HHS
    
    
11.   National Library of Medicine, NIH, HHS
    
    
12.   Office of Extramural Research, OD, NIH, HHS
    
    
13.   Office of Research on Women's Health, OD, NIH, HHS
    
    
14.   U.S. Census Bureau
    
    
15.   U.S. Department of Justice
    
    
16.   Warren Grant Magnuson Clinical Center, NIH, HHS
    
    
17. Academy for Health Services Research and Health Policy
    
    
18. American Foundation for AIDS Research
    
    
19. Center for the Study of Autism
    
    
20. International Center for Research on Women
    
    
21. International Dyslexia Association
    
    
22. Michael Fund, The International Foundation for Genetic Research
    
    
23. Society for Women's Health Research
    
    
24. United Cerebral Palsy Associations
    
    
25. World Institute on Disability
    
    

= Indicates Federal Resources