An orphan or rare disease is generally considered to have a prevalence of fewer than 200,000 affected individuals in the United States. Certain diseases
with more than 200,000 affected individuals are included, but subpopulations of these conditions may be less than the prevalence
standard for rare disease. This list includes rare diseases and conditions for which information requests have been made to the ORD. It is updated on a regular basis. We welcome
suggestions for additions to the list and your recommendations may be sent via email to: email@example.com
Note: The names of the conditions may not necessarily be the most common. Clicking on one of the names below will take you to a page that contains specific information for that disease.
The links on these pages are a work in progress, so please check back often for new information. Enter the complete condition name or a few letters of the condition name for which you are looking. Your search
will return either an exact match or a list of possible matches based on the text string you enter. Click on the condition name of interest for links to further resources. If your search retrieves no results,
try browsing the list alphabetically.